Above all, I cherish the adventure of this one life that has been entrusted to me.
That is one of many lessons having Cystic Fibrosis has taught me after 23 years of it being front and center in my world. As much as CF has always had a cruel way of rearing its head and reminding me it’s there in the wings ready to threaten any plans of being young, healthy, happy, and living life to the fullest, it is also true that it will never EVER define me. That’s a decision I make every day.
My sister Rachel and I were both diagnosed with Cystic Fibrosis shortly after we were born. My parents dedicated their lives to keeping us safe from the hardships CF can weave into the lives of those who live its tale. Our defense included infection control, mountains of pill bottles, hours of daily treatments and therapies, and frequent hospital visits; all designed to delay the progression of a disease bent on taking our lives.
To be here today is a gift. Every day is a gift. I owe it ALL to those who have generously supported the research that led to the breakthrough drugs that have quite literally turned my life around these last few years, bringing me the bright tomorrows I’ve hoped and longed for, despite all odds. These advancements have bought me beautiful TIME so the scientists can work to find a forever cure for CF - time to live, to love, to grow, and to cherish the adventure while I wait for the miracles science is unfolding.
My days are full of challenges, but even more full of hope and the beauty I see in everything. It is what led me to my love for all things FASHION and the opportunity it gives us to creatively express who we are and who we aspire to be. As a senior stylist for Stitch Fix, I spend my days helping others to see themselves in the best light and teaching them how to showcase their strengths and personalties in the way they present themselves to the world. As a social media specialist and marketing enthusiast, I live a life focused on recognizing the joy in every day experiences.
This year I am thrilled to be participating in the Fashion Breathes Life Gala to raise funds for the Cystic Fibrosis Foundation and the research it supports. It all culminates on April 1, 2022 at the 7th Annual Fashion Breathes Life Gala, where they have asked me to walk the runway in designer couture (oh my, no pressure)! Those of you from Charlotte may know a little about this event, but it is one of the city’s premiere fashion events. FBL has been consistently raising more than $400,000 (in one night!) and attracts some of Charlotte’s most fashionable and charitable elite.
As part of my commitment to the event, I have lofty fundraising goals to meet, but with your help and support I know I can make it happen!
Please consider making a donation or purchasing a ticket, table or sponsorship. Your generous gift will be used efficiently and effectively—The CF Foundation takes great pride in being one of the most efficient and effective organizations of its kind, and is a careful steward of every dollar raised in support of its mission. Virtually every approved CF drug available today was made possible because of Foundation support, and research to find a cure is more promising than ever before. Plus, donations are tax-deductible!
Making a donation is easy and secure! Just click on the link below to make a donation on this page which will be promptly credited to my fundraising efforts. Remember, no donation is too small and any amount you can donate will be greatly appreciated!
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Directly from my heart to yours, thank you for considering supporting me. It means everything to me!