As many of you know, my 13-year-old nephew Oliver has Cystic Fibrosis. Oliver is one of the best human beings I know – he is full of light, stories and he loves sports! He is like a human statistic sheet – any game, any time. He is a beautiful soul and we cherish him.
Cystic Fibrosis is a progressive, genetic disease that causes long-lasting lung infections and limits the ability to breath over time. More than 30,000 children and adults in the United States have CF (70,000 worldwide) and CF affects people of every racial and ethic group.
Oliver is a trooper. He has a strict daily regiment of enzymes every time he eats, along with nebulizer treatments and a vest treatments to help break up the mucus. Kristen and I get the pleasure of watching Oliver and Henry when his parents leave town and when you are responsible for all of his treatments, you see what an enormous effort these patients and their families do day in and day out – we should all be very thankful.
Six years ago, my amazing and beautiful sister Jill and her husband Ben started Fashion Breathes Life to raise money and awareness for Oliver and the others with CF. It is a fantastic event, full of life, energy and fundraising. This year, I am humbled to be a Super Model and I encourage you to learn about CF and ways that you can get involved to help. For now, you are welcome to donate to my campaign!
This year, Fashion Breathes Life will be hosted at the Van Landingham Estate in Charlotte, NC. Please reach out if you would like to join us for an evening of great music, fashion and fare! We would love to see you!
On behalf of Oliver, Jill, Ben and our family, thank you!