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Taylor Roesch

Taylor Roesch

FestivAle is the Cystic Fibrosis Foundation’s annual craft beer tasting celebration! This one-of-a-kind event brings together approximately 350 beer enthusiasts to sample handcrafted, high-end beers from over 25 of Chicagoland’s finest brewers. FestivAle also features delicious bites from local restaurants, festival inspired games and treats, and live music all while supporting the mission of the Cystic Fibrosis Foundation.

Join us on October 11th and make a difference in the lives of those living with CF!

Artifact Events – South Entrance
4325 N Ravenswood Ave
Chicago, IL 60613
6:30 PM – 10:00 PM
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I am supporting the Cystic Fibrosis Foundation for all of those who have lost their battles against CF and for those who are still fighting, and I invite you to join me!

Cystic Fibrosis (CF) is a life-shortening genetic disease that affects the lungs and digestive systems of about 30,000 Americans. I’ve been very involved with the foundation since my little brother, Dylan, was diagnosed with CF at the age of 3.

Typically, the way to survive past your 20’s was by having a double lung transplant. Dylan's case was more aggressive than the average patients’ and at the time of diagnoses, his doctors told our family he would be lucky to attend college. Dylan's childhood consisted of long extensive hospital stays, 50+ pills a day, nightly feeding tube treatments for nutrition, and nebulizers.

In January of 2012, my brother's lung capacity was quickly declining. We received a phone call that the FDA fast tracked and approved a drug called Kalydeco. This was the fastest the FDA had ever approved a drug and it happened to be effective for my brother’s rare mutation, which makes up about 4% of the CF population, or 1,200 people. Since 2012, Kalydeco combined with other drug combinations has brought this same experience to about 75% of the CF population. While this drug is not a cure, it has vastly increased the life spans of those living with CF and has improved their quality of life.

The Cystic Fibrosis Foundation has fueled dramatic improvements in cystic fibrosis research and care. Because of the Foundation, people with CF are living longer and healthier lives. The outlook for people with CF continues to improve year after year.

Thanks to these improvements, my brother is 21 years old attending Montana State University; spending his time snowboarding, dirt biking, “studying”, and being a regular college kid. On top of this, his daily regimen has been cut almost in half.

While these advancements are remarkable, they are only made possible by generous donations from people like you… so the fight against CF is not over! Together, we can make CF stand for “Cure Found.” Come join me at the Festivale for a few too many drinks for a great cause!

Best - Taylor

OCT
2

We have come a long way!

Comments

$15,815
raised of $10,000 goal
 

Recent Donations

$100.00
1. KRKathleen Rhea
Sorry we can't make it. Have a fantastic event
2. LRLindsey Rhea
Good luck tonight!
$25.00
3. SSSally Stocchero
$50.00
4. CZChris Zott
$2,500.00
5. ?Anonymous
$2,565.00
6. SMStewart Magnuson