I want to tell you about my involvement with Cystic Fibrosis Foundation and why it is important to me. I first got involved with CF in the late eighties when my friends and I volunteered to work for their annual Sixty Five Roses golf tournament that was then held at a local country club. It is near and dear to my heart because I lost a classmate to CF before we graduated high school. Not only was Kevin Wohlhieter a very bright kid, he always had a smile, he had a wickedly dry sense of humor, he let me cheat off of him in science class, and we shared the same birthday. He would have done great things, and it's sad that he was taken from us at such a young age. WE all lost out on a lifetime of friendship with him.
Many people have been lost way too early because CF. However, because of ever increasing research, people with CF today are living into their 40s. Yes, this is both great news and pathetic news. We should not be in a position where we are celebrating someone making it to 40. We should be celebrating them making it to 80! And although the research for CF has, for a lack of better words, achieved great strides, there is still much to do. Why haven't we come further? Research. While we are fortunate that the CF population is small -- roughly 30K people in the US have CF -- a "cure" is not a big money maker for Big Pharm. As a result, the monies needed for further research come from private donations and fundraisers. That is why we need your help.
How can you help? Please come to the 15th Annual Brewer's Ball that is being held at the Anthem in the DC Wharf, on March 28, 2020, to help raise money for CF research. There will be over 30 craft breweries and many local restaurants serving some excellent beer and food. And a really popular local band called White Ford Bronco.
If you cannot attend, please consider making a donation for this wonderful cause. Can't make a donation? Maybe you have some have something that can be donated to our auction? If so, feel free to reach out to me and I can let you know how to donate!
I thank you all in advance.
Best - Mark