My name is Laney Siems. I am 25 years old and was diagnosed with cystic fibrosis when I was five months old. I am currently living in New York City with a job at Single Platform and I love it! I have had to think about my future and what it holds for me. I used to get nervous about this next chapter in my life but, with research getting better every day and the breakthrough of drugs like Orkambi and Symdeko, my worries about the future have become a little less stressful. Although things are progressing, we are nowhere near finished with this fight for a cure. Thank you so much for all you have done for me and the foundation. Also, thank you to the foundation and my doctors for all their support and hard work.
With your help, we have gained tremendous momentum in our quest for breakthroughs in treatment and care, and we are truly making a difference in the lives of people with CF. This is a reality because of events like Feastival, and you! We are humbled and grateful for your tremendous and continued support of the Cystic Fibrosis Foundation.