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Welcome to Colleen's Page

Colleen Crowley

Colleen Crowley

Hey everyone! My name is Colleen, I am 24 years old and was diagnosed with CF when I was just two weeks old. I am so excited to be on board with all of the other amazing CF ambassadors for this year’s events. This past year, although one of the most difficult we have all faced, was still filled with some things I am very grateful for. For one, I’ve now been on Trikafta for a full year and am feeling healthier and more energized than I have in a long time! Minus a few strange side effects and bumps in the road, this drug really has changed not only my physical health but also my outlook on my life and my future, which I am so thankful for.

In other news, I’m now fully vaccinated against Covid-19, I’m graduating this spring with my master’s in social work, and my older sister is getting married this summer. So much excitement in a short amount of time and I’m just trying to soak it all in.

I’m excited and hopeful that we will start to have some events for the foundation in person as the world becomes a bit safer. Thanks to events like Feastival and the generous support of all our donors, doctors, and researchers, we have made huge strides towards a cure for this brutal disease. BUT we aren’t done! There are still too many CF fighters that cannot take Trikafta or any other effective treatment methods, which is something we absolutely need to keep fighting for. I’m so thankful for my support system that has stood by my side the past 24 years and I know they will keep fighting with me until everyone has an effective treatment option and one day a cure! Now let’s do it!

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