Hi, my name is Jordan Magsamen and I am 26 years old. I was diagnosed with Cystic Fibrosis when I was 17 months old. I am in the chapter of my life where I try every day to better myself for my wellbeing. Whether that be sleeping a few extra hours, doubling up on my treatments or going to the gym. I am at a crucial age where taking care of myself must come first. I used to get anxious about this chapter of my life but now I can truly just smile about it and thank all of my supporters for always pushing me to do everything that was needed to survive. For my age my lung function is great and I cherish that every day. With today’s research and break throughs in treatments and drugs, I am able to breathe a little bit easier. I like to volunteer for the CF Foundation and participate in great events, just like Feastival to raise funds for more research. Being a CF advocate, raising awareness and funds, to hopefully change my life and that of others with CF. We still have a lot of work to do, but we are well on our way to life-changing treatments and hopefully, a cure! Please join me on this journey and make a difference.
Best - Jordan