Dennis & Jennifer O'Leary
Many CF patients are currently benefiting from life changing oral medications that minimize CF symptoms to the point that they no longer need to follow the exhausting routine of drugs and therapies to keep them healthy.
Casey is not eligible to take these miracle drugs. The Cystic Fibrosis Foundation is dedicated to finding a cure for all CF patients and is now focused on rare and nonsense mutations, the type that affect Casey. The CFF motto is "until it's done". Research and clinical trials are currently underway not only to develop medications to treat CF symptoms for these patients but also for a true cure, an end to CF, for all patients. Both of these goals are within reach.
This science costs money and that is where we need your help. Please join us at this year's event and/or make a donation to Brewer's Ball to help Casey and all the others afflicted with this horrible disease.
Thank you in advance for your support and participation to this event, you are helping to make a difference for people living with CF!
Dennis & Jennifer