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Our Fight to End CF

Charlie Nettles

Charlie Nettles

Dear Friends,

As you know, our youngest daughter, Paige, was diagnosed with cystic fibrosis nine years ago. Betsy and I, along with Sharon and Jason DeLorenzo, co-chair the 65 Roses Golf Classic, an event that raises important funds toward a cure for this brutal disease.

Since the inception of the 65 Roses Golf Classic, three drugs that treat the underlying cause of cystic fibrosis in more than half of all people with the disease have been approved. We are blessed that our children, Paige, Sophie and Jack each are benefiting from one of these drugs. While these drugs have improved the health of our children and numerous others, they are not a cure. Our shared goal is to put an end to this insidious disease.

Current research around the world in cutting-edge fields like gene editing has the potential to change the future for every person with CF. As parents of children with CF, that will be the day our dreams come true. We hope you will join us on our journey to put an end to cystic fibrosis by donating $50, $100 or whatever amount you choose. Every dollar is greatly appreciated, fully tax deductible and will help us in this fight to cure cystic fibrosis.

To donate, please click the “ DONATE ” button.

Each day, we get closer to a world in which every person with CF can make plans for the future that do not revolve around CF.

Many thanks for your support.

Charlie and Betsy


raised of $50,000 goal

Recent Donations

1. ?Anonymous
2. BTBobby Tudor
3. MPMark Provenzano
4. BSBruce Smith
Charlie,Very proud of your consistent, never ending quest to find a cure for cystic fibrosis. I hope one day we will all be celebrating with Paige the end of this terrible disease.Keep fighting the fight!Bruce
5. JHJames Hinton
6. CFCynthia Ford