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Welcome to Dennis & Jennifer's Page
Dennis & Jennifer O'leary
Dennis & Jennifer O'Leary
Cheers! Welcome to the 21st Brewers' Ball - an amazing way to raise money to find a cure for Cystic Fibrosis for our son Casey and all others who courageously battle this disease!
Casey turned 25 in April. He was diagnosed with Cystic Fibrosis at four weeks of age due to failure to thrive. Through genetic testing we discovered that he has two rare/nonsense CF mutations. As a result, we learned that he would be at the end of a long line of CF patients waiting for effective treatments and a cure. In his lifetime, we have seen the development of truly amazing CF drugs called modulators that add decades to the lives of most CF patients. The Cystic Fibrosis Foundation that funds critical research and accompanying clinical trials, bringing life changing drugs to reality.
Casey is in the 10% of the CF population for whom these modulators are not effective or are not tolerated. A cure for these patients will likely come in the form of genetic therapy. Research and development of these therapies is underway and very expensive.
Casey lives his life to the fullest every day. He gives us hope and the resolve to stay in this fight to end CF until it is won.
What a better way to support this cause than a fun evening of food and drink, live music and a beautiful setting? Please join us or make a donation to help Casey continue to live his best life!
Thank you in advance for your support, you are making a difference!
Dennis & Jennifer
Casey turned 25 in April. He was diagnosed with Cystic Fibrosis at four weeks of age due to failure to thrive. Through genetic testing we discovered that he has two rare/nonsense CF mutations. As a result, we learned that he would be at the end of a long line of CF patients waiting for effective treatments and a cure. In his lifetime, we have seen the development of truly amazing CF drugs called modulators that add decades to the lives of most CF patients. The Cystic Fibrosis Foundation that funds critical research and accompanying clinical trials, bringing life changing drugs to reality.
Casey is in the 10% of the CF population for whom these modulators are not effective or are not tolerated. A cure for these patients will likely come in the form of genetic therapy. Research and development of these therapies is underway and very expensive.
Casey lives his life to the fullest every day. He gives us hope and the resolve to stay in this fight to end CF until it is won.
What a better way to support this cause than a fun evening of food and drink, live music and a beautiful setting? Please join us or make a donation to help Casey continue to live his best life!
Thank you in advance for your support, you are making a difference!
Dennis & Jennifer
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