Hi everyone!  My name is Colleen, I am 29 years old and was diagnosed with CF when I was just two weeks old. I am so excited to celebrate with my friends and family at this year’s Feastival event, but even more excited to stand by the sides of all the other amazing CF ambassadors.

When I was born, the life expectancy for someone with CF was less than 30 years old. Despite my fairly good health throughout my childhood and young adulthood, I think it’s fair to say that number was always creeping in the back of mine and my family’s heads. Each year that I get closer to that milestone is filled with bittersweet feelings. I have now been on Trikafta for six years and as the time passes, those bittersweet feelings are mixed with more confidence for a long and healthy future.

I want to thank everyone for visiting this page, attending different CF events, and donating year after year to fight against this brutal disease. I wouldn’t have made it this far without my support system and I will forever be grateful for everyone who has stood by my side all these years. Your donations, prayers, and raising awareness make a huge difference, but there is still so much work to be done! Trikafta and other genetic modulators are not a cure, and there are still so many CFers who are unable to take these lifesaving medications. I will not stop fighting for every person with CF until a cure is found, and I hope you all will join me. Can’t wait to see everyone at this year’s Feastival!

Best - Colleen
Colleen Crowley @colleen_crowley