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Welcome to Theo's Page
Thelonious Johnson
Thelonious Johnson
Hi everyone, my name is Thelonious (Theo) Johnson. I graduated from Salisbury University in Maryland in December 2023 and now work as a prekindergarten teacher, as well as a track, soccer and basketball coach. I live with cystic fibrosis and am incredibly thankful for the strong support system I have through my family, friends, and the CF community
I was born with a bowel blockage and shortly after diagnosed with CF. While most people my age are weighed down by starting new careers and figuring out how to maneuver adult life, I have the added stress of managing my CF care. This care involves taking numerous medications daily and physical therapy twice daily. This added responsibility can seem overwhelming at times on top of “normal” life. There is also a constant concern of becoming sick, having a decrease in lung function and having to be hospitalized due to CF related infections and complications, all of which I have experienced.
In December 2019, I was prescribed the drug Trikafta which has helped me to maintain my weight and lung function. While Trikafta has been an amazing game changer for me and many others with CF there is still a long way to go before everyone with CF can be free from the unfortunate realities of this disease. There are still 10 percent of those with CF who do not benefit from Trikafta or any other therapies.
The CF Foundation works constantly to create a life without CF not just a dream, but a reality for all.
I ask that you not just help us financially to meet our goals, but to also provide your positive thoughts and a small amount of time to make a huge difference. I ask that you consider sharing my bio on your social media or by calling someone with CF who is sick and, in the hospital, or by volunteering at CFF events. Your help has proven to change thousands of lives for the better. As individuals we cannot conquer CF, but as a community we can do anything. Let’s all work together and make CF stand for Cure Found!
Best - Theo
@theo0425
I was born with a bowel blockage and shortly after diagnosed with CF. While most people my age are weighed down by starting new careers and figuring out how to maneuver adult life, I have the added stress of managing my CF care. This care involves taking numerous medications daily and physical therapy twice daily. This added responsibility can seem overwhelming at times on top of “normal” life. There is also a constant concern of becoming sick, having a decrease in lung function and having to be hospitalized due to CF related infections and complications, all of which I have experienced.
In December 2019, I was prescribed the drug Trikafta which has helped me to maintain my weight and lung function. While Trikafta has been an amazing game changer for me and many others with CF there is still a long way to go before everyone with CF can be free from the unfortunate realities of this disease. There are still 10 percent of those with CF who do not benefit from Trikafta or any other therapies.
The CF Foundation works constantly to create a life without CF not just a dream, but a reality for all.
I ask that you not just help us financially to meet our goals, but to also provide your positive thoughts and a small amount of time to make a huge difference. I ask that you consider sharing my bio on your social media or by calling someone with CF who is sick and, in the hospital, or by volunteering at CFF events. Your help has proven to change thousands of lives for the better. As individuals we cannot conquer CF, but as a community we can do anything. Let’s all work together and make CF stand for Cure Found!
Best - Theo
@theo0425
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