The past year has been filled with plenty of ups and downs, but two things I can say I’m extremely grateful for are my 2-year anniversary being on Trikafta and turning the age of 25. When I was born, the life expectancy for someone with CF was less than 30 years old. Despite my fairly good health throughout my childhood and young adulthood, I think it’s fair to say that number was always creeping in the back of mine and my family’s heads. Turning 25 was a huge milestone for all of us and we are eternally grateful seeing how things look today thanks to modern medicine. I still struggle with significant fatigue and digestive issues, and Covid kicked my butt earlier this summer, but overall I feel much healthier and hopeful for a long future ahead thanks to Trikafta.
I want to thank everyone for visiting this page, attending different CF events, and donating year after year to fight against this brutal disease. I wouldn’t have made it this far without my support system and I will forever be grateful for everyone who has stood by my side all these years. Your donations, prayers, and raising awareness make a huge difference, but there is still so much work to be done! Trikafta and other genetic modulators are not a cure, and there are still so many CFers who are unable to take these lifesaving medications. I will not stop fighting for every person with CF until a cure is found, and I hope you all will join me. Can’t wait to see everyone at this year’s Feastival!