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Jordan Magsamen

Jordan Magsamen

Hi, my name is Jordan Magsamen and I am 28 years old. I am a dog mom to two beautiful puppies and I live with my boyfriend Chris. I was diagnosed with Cystic Fibrosis when I was 17 months old. I will be 29 this year and that means I’m only 1 year away from 30. I truly never thought I’d see 21, 25 and definitely not 30. I am so grateful for Trikafta. It has improved my lung health so much. Even though I am living a better, healthier life there are of course some downfalls. I still struggle, it is not easy. Exhaustion, migraines, body pain, balancing my diabetes, liver disease, high blood pressure and Kidney disease. Unfortunately, my Kidney Disease has progressed rapidly and I am now in Stage 4 Kidney Failure. I will eventually need a Kidney transplant. This was a hard pill to swallow considering I was born with a genetic lung disease. Now I just have to deal with another obstacle of challenges. I will get through this just like I always have. I used to get anxious about getting older and what my life would look like but now I know I'll be around for a little longer. Everyone has always pushed me to be strong and do everything that was needed to survive. I am so happy to say I am livin’ life with my family, my amazing boyfriend, puppies and friends! I am one lucky woman. For my age my lung function is in a great range and I cherish that every day. With today’s research and break throughs in treatments and drugs, I am able to breathe a little bit easier. I like to volunteer for the CF Foundation and participate in great events, just like Feastival to raise funds for more research. Being a CF advocate, raising awareness and funds, to hopefully change my life and that of others with CF. We still have a lot of work to do, but we are well on our way to life-changing treatments and hopefully, a cure! Please join me on this journey and make a difference. We will not stop until CF stands for Cure Found! ❤️ 


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