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Laney Siems
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Laney Siems

I was diagnosed with cystic fibrosis when I was 5 months old. In 2019, I was lucky enough to be a candidate for the groundbreaking drug Trikafta. While this life-changing drug has given me a 9% boost in my lung function, I still take between 25 and 30 pills a day, among other treatments.

I have learned a lot through my battle with CF. Over the years, things certainly got more difficult for me in terms of my disease.

CF and diabetes can be wildly difficult to manage, and the progression of CF has begun to take more of a toll on my body the couple of years before I started taking Trikafta. It had been much more difficult to do simple things like walk up a flight of stairs or get out of bed. I am so thankful for Trikafta which has given me better health, the ability to work out and run again without feeling overly defeated, and some much-needed peace of mind.

Trikafta has allowed me to take control of my own life and live as close to a normal life as possible. I moved to San Diego in May of 2023 and I am absolutely loving it!
Although Trikafta has changed many things for the better, it is still not a cure! I ended up getting sick in November and had to go on IV antibiotics for a Cystic Fibrosis lung infection in December of 2023. After two weeks on the antibiotics, they were not working so I had to be admitted to the hospital for a week. I ended up being on IV antibiotics for 5 weeks before my lung function came back up to baseline. That hospitalization and sickness was a humble reminder that CF is still very much part of my life and something I continue to fight daily. It reminded me that we are still not there yet, and in order to get there, we need your support, donations, and to show up until CF finally stands for CURE FOUND. With your help, we are on our way, but we still need to keep fighting!  Let's find a CURE!

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