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Welcome to Laney's Page

Laney Siems

Laney Siems

I was diagnosed with cystic fibrosis when I was 5 months old. Two years ago, I was lucky enough to be a candidate for the groundbreaking drug Trikafta. While this life-changing drug has given me a 9% boost in my lung function, I still take between 25 and 30 pills a day, among other treatments.

I share my experience with CF through my Instagram page, @lifeaslanes. I was recently reminded why it’s so important to be a voice and share my story when I was contacted by a husband and wife who are expecting their first child. They had just found out that she will be born with CF. We FaceTime’d for 2 and a half hours chatting about what CF is, my experience, resources and doctors for them. It was one of the most rewarding things to be able to help out in the little way I can for them. I have two new friends for life after that call – soon 3! When I started the page on Instagram it felt so small and scary, but knowing I can help even one person is well worth the vulnerability.

Trikafta has changed my life and the lives of many others with CF. However, this is not a cure, and there are still 10% of CFers who cannot benefit from drugs like Trikafta. We won’t stop until CF stands for Cure Found! So keep the donations, awareness and education coming!


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