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Welcome to Laney's Page

Laney Siems

Laney Siems

My name is Laney Siems. I am 27 years old and was diagnosed with cystic fibrosis when I was 5 months old. I am currently living in my hometown of Baltimore, MD and have recently begun working as an Account Advisor at Cision! I moved back home from NYC spring of 2019 to focus on my health. I was lucky enough to be a candidate for the new groundbreaking drug Trikafta. I started the treatment in December 2019 and it has been a game changer for my health. With the exception of a few bumps along the way, Trikafta has given me a 9% boost in my lung function. I could not be more excited about how this has given me a better chance at life. Although we have made strides in finding new ways to help people like myself with CF, we still have a long way to go. This new drug is not a cure, and not everyone with this horrible disease is able to take Trikafta. That being said, we still need to raise money and spread awareness about CF. With your help, we have gained tremendous momentum in our quest for breakthrough in treatment and care, and we are truly making a difference in the lives of people with CF. This is a reality because of events like Feastival, and you! We are humbled and grateful for your endless support of the Cystic Fibrosis Foundation.


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