I have two nonsense mutations, therefore I am ineligible for any current modulators, such as Trikafta. I have participated in clinical trials in hopes of a modulator for the remaining 10% of patients without one. While at times it can be jarring, I am determined not to let CF defeat me.
Despite living with a debilitating disease, I lead a very fulfilling life. In April I got married to my beautiful bride, Alyssa. Together, we live in the Washington, DC area where I have a full time job, and Alyssa works as a registered nurse. In my spare time, I enjoy cooking international dishes and cheering on my favorite sport teams, the Ravens, Terps and Orioles.
My wife and I enjoy traveling and experiencing different cultures. Our favorite trip thus far has been Morocco. The CF community has shown much generosity and support, which has helped me reach many milestones. I know that we can finish this fight to find a cure for this deadly illness.