I am part of the 10%. The 10% who cannot take the life-changing, “miracle drug”, Trikafta, which was approved in October 2019. It’s easy to assume that I would feel sad, not being able to take the drug, but the truth is that I am not sad at all. Watching this drug absolutely transform some of my closest CF friend’s lives has been incredible! I can’t help but feel overjoyed. I KNOW, without a shadow of doubt, that the Cystic Fibrosis Foundation will NOT forget us! The CFF is working tirelessly to develop a drug that treats the underlying cause of CF in our 10%, and a cure for all. I could not feel more confident knowing that my life is in the hands of the Cystic Fibrosis Foundation!
Throughout the years, my passion as a CF advocate has truly gone through the roof! My favorite day of the year is walking with my team, Team Fireworks, at the Great Strides Walk in Annapolis. I also jump at every possible opportunity to raise awareness for CF as well as participate in as many clinical trials as I can. I love fighting this fight against CF with the most amazing people, doctors, and researchers by my side. We are blessed to have people like you, so readily eager to support research and advancements in finding a cure for cystic fibrosis. Thank you to the Cystic Fibrosis Foundation for everything you have done and continue to do! Now let’s finish this fight!