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Meet the ROSE UP Committee

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Meet the ROSE UP Committee
 
  


 

What does ROSE UP mean to you? Why do you want to ROSE UP this year?

To me ROSE UP is an opportunity to unite the CF community together. It allows people with CF and their loved ones a chance to showcase that were are connected through more than struggle and hardship. We are connected through passion as well.

Nicholas Kelly, 33






What does ROSE UP mean to you? Why do you want to ROSE UP this year?

I want to ROSE UP because there is more to do. We are getting closer to the finish line but we haven't crossed it yet. I am driven by the dream that one day there will be a cure for every person with CF. I want to ROSE UP so that I can be there to celebrate my son's milestones - his birthdays, graduations, wedding and maybe even hold my own grandchildren someday.

KC White, 42




What does ROSE UP mean to you? Why do you want to ROSE UP this year?

I want to ROSE UP to connect with the amazing CF community and bringing awareness to CF. I love that ROSE UP allows anyone and everyone to participate, by doing what means most to them. It’s a day full of joy, excitement learning how others are supporting the CF community!

Lydia Sand, 30



What does ROSE UP mean to you? Why do you want to ROSE UP this year?

I ROSE UP to honor my parents!

Marissa Benchea, 44





What does ROSE UP mean to you? Why do you want to ROSE UP this year?

I ROSE UP so we can continue the momentum of medical advancements so we can find that cure for everyone with CF! ROSE UP is a way for all of us to connect and build community. Our bond is strong and ROSE UP strengthens it even more. They say blood is thicker than water, but, I say, mucus is thicker than both.

Somer Love, 41





 
What does ROSE UP mean to you? Why do you want to ROSE UP this year?

ROSE UP means leadership, fellowship, legacy and coming together to be awesome!

Heather McCoy, 28







What does ROSE UP mean to you? Why do you want to ROSE UP this year?

To me, ROSE UP is the community working together towards advocacy. I want to ROSE UP to stand alongside my community members and raise awareness.

Olivia Clark, 26




What does ROSE UP mean to you? Why do you want to ROSE UP this year?

ROSE UP means showing the world that people with CF can make a difference. I want to continue to inspire our community in memory of my mom and sister.

Andy Lipman, 47


 



What does ROSE UP mean to you? Why do you want to ROSE UP this year?

To me this event is about bringing our community together to demonstrate and celebrate how diverse we are in our journey's. I want to Rose Up this year to say thank you everyone who helped make it possible for me to celebrate my 40th birthday with my wife, my two boys and my family and friends.

Chad Riedy, 40




What does ROSE UP mean to you? Why do you want to ROSE UP this year?

ROSE UP is very near and dear to my heart. It signifies the act of all of us doing our part in showing up for all those with CF until there is a cure for everyone of us. I ROSE UP for my future and the future of cystic fibrosis.

Noor Elshaar, 31
Meet the ROSE UP Committee
 

What does ROSE UP mean to you? Why do you want to ROSE UP this year?

To me ROSE UP is an opportunity to unite the CF community together. It allows people with CF and their loved ones a chance to showcase that were are connected through more than struggle and hardship. We are connected through passion as well.

Nicholas Kelly, 33



What does ROSE UP mean to you? Why do you want to ROSE UP this year?

I want to ROSE UP because there is more to do. We are getting closer to the finish line but we haven't crossed it yet. I am driven by the dream that one day there will be a cure for every person with CF. I want to ROSE UP so that I can be there to celebrate my son's milestones - his birthdays, graduations, wedding and maybe even hold my own grandchildren someday.

KC White, 42



What does ROSE UP mean to you? Why do you want to ROSE UP this year?

I want to ROSE UP to connect with the amazing CF community and bringing awareness to CF. I love that ROSE UP allows anyone and everyone to participate, by doing what means most to them. It’s a day full of joy, excitement learning how others are supporting the CF community!

Lydia Sand, 30



What does ROSE UP mean to you? Why do you want to ROSE UP this year?

I ROSE UP to honor my parents!

Marissa Benchea, 44



What does ROSE UP mean to you? Why do you want to ROSE UP this year?

I ROSE UP so we can continue the momentum of medical advancements so we can find that cure for everyone with CF! ROSE UP is a way for all of us to connect and build community. Our bond is strong and ROSE UP strengthens it even more. They say blood is thicker than water, but, I say, mucus is thicker than both.

Somer Love, 41



What does ROSE UP mean to you? Why do you want to ROSE UP this year?

ROSE UP means leadership, fellowship, legacy and coming together to be awesome!

Heather McCoy, 28



What does ROSE UP mean to you? Why do you want to ROSE UP this year?

To me, ROSE UP is the community working together towards advocacy. I want to ROSE UP to stand alongside my community members and raise awareness.

Olivia Clark, 26



What does ROSE UP mean to you? Why do you want to ROSE UP this year?

ROSE UP means showing the world that people with CF can make a difference. I want to continue to inspire our community in memory of my mom and sister.

Andy Lipman, 47



What does ROSE UP mean to you? Why do you want to ROSE UP this year?

To me this event is about bringing our community together to demonstrate and celebrate how diverse we are in our journey's. I want to Rose Up this year to say thank you everyone who helped make it possible for me to celebrate my 40th birthday with my wife, my two boys and my family and friends.

Chad Riedy, 40


What does ROSE UP mean to you? Why do you want to ROSE UP this year?

ROSE UP is very near and dear to my heart. It signifies the act of all of us doing our part in showing up for all those with CF until there is a cure for everyone of us. I ROSE UP for my future and the future of cystic fibrosis.

Noor Elshaar, 31