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I ROSE UP for all people with CF
Amanda Ford
I am excited to share I am participating in ROSE UP on October 24, 2024.
ROSE UP, now in its fifth year, is a virtual fundraising event created and led by adults with cystic fibrosis to bring the CF community together to advance the mission to find a cure and to improve the quality of life for all people living with CF. I am participating in honor of my son, Ethan…and in memory of my friend, Lindsey, who we lost last year. (She may have lost the battle…but she won the war. That woman was amazing and fought harder than most people could ever dream of.)
ROSE UP participants are encouraged to choose an activity that is meaningful to them to accomplish on ROSE UP day. That activity could be running, walking, painting, baking, head shaving, dancing, and so much more!
Although we will be on vacation with our whole family that day (Ethan declined to go because he is determined to excel in school so he can pursue dreams I never thought would be possible when we began our journey with cystic fibrosis), we are deciding on an activity to honor E, to remember Lindsey and her beautifully short life, and to continue to fight for those touched by CF.)
Our goal this year is to raise $555,000! You can help us reach our goal by donating today and helping to spread the word to friends and family.
Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress. Working alongside the CF community, the Foundation has fostered the development of more than a dozen CF treatments – an unprecedented number in a short span of time -- and helped add decades of life for people with CF.
Despite this progress, many people with CF currently do not benefit from existing therapies.
I am proud to be part of ROSE UP this year along with others in the CF community who dream of the day when CF stands for Cure Found. Please join me in supporting ROSE UP!
Whether you make a donation, raise awareness about CF by sharing your story and tagging #ROSEUPCF on social media, or do both – you are making a powerful difference for people living with CF. Thank you for your continued support in our fight for Ethan and those with CF!!
Let’s ROSE UP together!
#ROSEUPCF
ROSE UP, now in its fifth year, is a virtual fundraising event created and led by adults with cystic fibrosis to bring the CF community together to advance the mission to find a cure and to improve the quality of life for all people living with CF. I am participating in honor of my son, Ethan…and in memory of my friend, Lindsey, who we lost last year. (She may have lost the battle…but she won the war. That woman was amazing and fought harder than most people could ever dream of.)
ROSE UP participants are encouraged to choose an activity that is meaningful to them to accomplish on ROSE UP day. That activity could be running, walking, painting, baking, head shaving, dancing, and so much more!
Although we will be on vacation with our whole family that day (Ethan declined to go because he is determined to excel in school so he can pursue dreams I never thought would be possible when we began our journey with cystic fibrosis), we are deciding on an activity to honor E, to remember Lindsey and her beautifully short life, and to continue to fight for those touched by CF.)
Our goal this year is to raise $555,000! You can help us reach our goal by donating today and helping to spread the word to friends and family.
Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress. Working alongside the CF community, the Foundation has fostered the development of more than a dozen CF treatments – an unprecedented number in a short span of time -- and helped add decades of life for people with CF.
Despite this progress, many people with CF currently do not benefit from existing therapies.
I am proud to be part of ROSE UP this year along with others in the CF community who dream of the day when CF stands for Cure Found. Please join me in supporting ROSE UP!
Whether you make a donation, raise awareness about CF by sharing your story and tagging #ROSEUPCF on social media, or do both – you are making a powerful difference for people living with CF. Thank you for your continued support in our fight for Ethan and those with CF!!
Let’s ROSE UP together!
#ROSEUPCF
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